Reading Time: 5 minutes

grief as a parent

My daughter was 14 months old when she got glasses and began to wear the felt purple eye patch I’d stitched for her. Coincidentally, it was the same month, she started walking at last and pushed through her first tooth. We’d noticed she frequently went cross-eyed.

It wasn’t until she could talk that the opthalmologist was able to understand she didn’t have a muscle problem. She had a genetic condition from my side called Dewayne’s Syndrome, from a missing cranial nerve. read more